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Showing posts with label survivor. Show all posts
Showing posts with label survivor. Show all posts

Tuesday, October 17, 2017

LLS Survivorship Series


LLS offers free, continuing education programs via our website.

The Leukemia & Lymphoma Society is offering an information-packed, educational Survivorship Series through the end of the year with three programs in October, November and December. This is the latest in LLS’ online educational opportunities for patients and caregivers to learn more about the illness and for healthcare professionals requiring continuing education.

Participants can log in to the LIVE webcast and will have the opportunity to ask questions in real time to noted experts and leaders in the field. If you cannot make it to these dates, please remember that LLS offers free, continuing education programs that can be accessed at any time. Log on to our website at www.lls.org/webcasts to register and receive full information about the upcoming events that can help you navigate your cancer journey equipped with the knowledge and resources to help you thrive.

THURSDAY, OCTOBER 26, 2017 Why is Nutrition Important for Cancer Patients? 12:00pm ET; 11:00am CT; 10:00am MT; 9:00am PT

Learn more about:
  • How good nutrition assists in promoting better treatment outcomes
  • Managing side effects associated with diagnosis and treatment
  • Nutrition resources for cancer patients


Speaker: Margaret Martin, RD, MS, LDN, CDE Nutrition Educator and Registered Dietitian PearlPoint Cancer Support Nashville, TN

TUESDAY, NOVEMBER 7, 2017 Communicating with your Healthcare Team
12:00pm ET; 11:00am CT; 10:00am MT; 9:00am PT

Learn more about:

  • Questions to ask the doctor about diagnosis and treatment 
  • What you should share with your treatment team 
  • How open communication can improve your quality of life


Speaker: Alison Mayer Sachs, MSW, CSW, OSW-C Director, Community Outreach & Cancer Support Services Eisenhower Lucy Curci Cancer Center at Eisenhower Medical Center Rancho Mirage, CA

WEDNESDAY, DECEMBER 20, 2017 Navigating the Financial Maze for Cancer Survivorship 12:00pm ET; 11:00am CT; 10:00am MT; 9:00am PT 

Learn more about: 
  • The various costs associated with cancer care 
  • Different types of insurance and assistance plans

Patient’s financial rights and where to get help Speaker: Joanna Fawzy Morales, Esq. CEO, Triage Cancer Culver City, CA Assistance

Please make plans to join us for these upcoming educational sessions. 
_______________________________________________________________________________

Dawn Guerrero is the Patient Access Manager of the North Texas Chapter of The Leukemia & Lymphoma Society and author of this monthly blog series.  She has a Masters in Business Administration and has experience working with varied aspects of the healthcare industry. 

Contact Dawn:
Dawn.Guerrero@lls.org 
972-996-5905

Wednesday, August 2, 2017

"My personal goal was to live until the next LLS conference because each year the research was improving."


Calvin Harkless and his wife make the drive from Edmond, OK to Dallas, TX every year to attend the North Texas Cancer Expo presented by Briggs Equipment.  They make a point not to miss it.  Why?  We'll let Calvin tell you in his own inspiring words.

"I was diagnosed December 24, 2010 with stage four multiple myeloma, cancer of the bone marrow. On January 5, 2011 I started weekly IV chemo infusions. I had no idea it would be four years and four months later before being taken off of all cancer treatment and drugs. 

My wife and I made it our mission to attend the North Texas Cancer Expo (formerly the North Texas Blood Cancer Conference) sponsored by The Leukemia &Lymphoma Society (LLS) each year. In 2011, we attended our first LLS conference and was overwhelmed by the information on Multiple Myeloma and other blood cancers. While attending the various sessions I recall thinking “I have a new paradigm for a hero.” The men and women, who dedicate their life to research and technology to find a cure for cancer, there can be no higher calling.

Having access to the top researchers in blood cancer, face to face Q&A with pharmaceutical representatives, networking with other blood cancer patients and care providers and hearing the many inspiring testimonies were invaluable. The LLS conference became my Christmas, each year anxiously waiting to hear about the new drugs approved and future research on blood cancer. My personal goal was to live until the next LLS conference because each year the research was improving.   

The highlight of attending the LLS conference was in 2012 after the FDA approved Velcade to be administered subcutaneous. The announcement was made during a presentation at the conference. At my next appointment with my oncologist, I shared the information on the FDA approval of Velcade to be administered subcutaneous and provided supporting documentation collected from the conference. This began the process of changing the hospital protocol from IV to subcutaneous injections. The following week the pharmaceutical representative confirmed the FDA approval during a doctor visit. I became very emotional having my chemo infusion for the first time subcutaneous. Each year after attending the LLS conference I would share with my oncologist the current research on Multiple Myeloma.

I was taken off of cancer treatment and drugs on May 2015.  In August 2016 no multiple myeloma cells were found active in my body. My wife and I will always be an advocate for The Leukemia & Lymphoma Society."

Don't miss your opportunity to participate in the FREE 2017 North Texas Cancer Expo presented by Briggs Equipment.  Registration is now open for the expo as well as the general and healthcare sessions.  The event is free but requires registration.  

Saturday, September 16th
Omni Hotel, Dallas, TX
8:00 a.m. - 3:00 p.m.



Wednesday, July 19, 2017

North Texas Cancer Expo: Full Schedule Released



After much anticipation, the full schedule for the 2017 LIVING YOUR BEST LIFE North Texas Cancer Expo presented by Briggs Equipment is now available!  Review the sessions available at this FREE event on Saturday, September 16th and reserve your seats by registering today!



8:00 AM - Expo & Registration Opens
9:00 AM - 9:30 AM - Opening Session
Welcome
Patricia Thomson, Ph.D., Executive Director North Texas Chapter
Don Armstrong, Expo Chair & Survivor
9:45 AM - 10:15 AM - Concurrent Morning Breakout Sessions
Movement and Yoga
Start your day with an energizing easy yoga session with tips on how to stay fit.
The New Normal
Join keynote speaker Lila Javan as she discusses life after cancer and finding balance in survivorship.
10:30 AM - 11:00 AM - Concurrent Morning Breakout Sessions
Disease Updates
Hear the latest in groundbreaking research updates from a panel of top oncologists in North Texas.
Finish Your Race
Author and acute myeloid leukemia (AML) survivor Don Armstrong empowers you to find your true purpose and live with an unstoppable passion.
11:15 AM - 11:45 AM - Concurrent Morning Breakout Sessions
Cancer Prevention Through Nutrition
Enjoy an educational cooking demonstration and tasting with certified nutritional coach and culinary instructor, Patricia R. Thomson, Ph.D.
Let's Talk About Cancer
A diverse panel of caregivers and survivors discuss the lines of communication patients face during cancer diagnosis and treatment. 
12:00 PM - 1:00 PM - Lunch & Keynote Speaker
Lunch Welcome
Patricia R. Thomson, Ph.D., Executive Director, North Texas Chapter
Dr. Brian Berryman, Texas Oncology
Keynote Speaker
Lila Javan, Survivor
1:15 PM – 1:45 PM – Concurrent Afternoon Breakout Sessions
Food Saved Me
Let Katherine Lawrence show you how you can cook faster, retain more nutrients, remove toxins and reduce food costs.
Side Effect Management
Join Walgreens Specialty Pharmacy, and LLS partner, as experts share the best ways to manage the effects of cancer treatment.
2:00 PM – 2:30 PM – Concurrent Afternoon Breakout Sessions
Mindfulness and Meditation
Research shows that meditation can improve everything from memory to mental acuity to anxiety.  Join our meditation coach for tips to use every day.
Survivorship Panel
Survivors and parents of survivors share their experiences and answer questions about survivorship at all stages post-treatment.
3:00 PM – Expo Closes



Wednesday, April 19, 2017

North Texas Cancer Expo: Keynote Speaker Announced



KEYNOTE SPEAKER ANNOUNCED:
Lila Javan
Two-Time Cancer Survivor & Founder of Climb 2 Cure




The North Texas Chapter is honored to introduce Lila Javan as the keynote speaker for the 2017 North Texas Blood Cancer Conference.  Lila Javan is a two time cancer survivor and filmmaker who has photographed award-winning features, commercials, documentaries and short films. She is also the founder of Climb2Cure, a new LLS fundraising campaign.

Let's take a minute to meet Lila.


"My name is Lila Javan. In 2010, my life was turned upside down when I was diagnosed with an aggressive form of Leukemia (AML). I was told that my only chance for survival was a stem cell/bone marrow transplant. I had a bone marrow transplant that fall – my sister was my donor – and after a year in turmoil, I recovered and rebuilt my life as a cancer survivor.

In 2014, my next adventure was to be a solo trip to Africa to climb Kilimanjaro. The very week that I was booking my flights, I discovered that my cancer was back. In September of 2014, after another summer of chemo, I had a second transplant. This time it was stem cells from an unrelated donor.

While I was in the hospital, a friend took a window frame and placed a beautiful photograph of Kilimanjaro in it. He hung this on my wall opposite my bed. Throughout my treatment, I would
stare at that window and visualized myself climbing the mountain. My doctors and nurses all asked about the picture and I would tell them about my magical trip. An amazing thing happened - my solo trip became a group trip. Now, a group of 14 doctors, nurses, therapists and friends all wanted to journey with me to climb the highest peak in Africa.

I reached out to LLS to see if we could do the trek as a fundraiser for them, and "Climb2Cure" was born.  My solo climb evolved into a new Team In Training fundraising platform for LLS that will continue for years to come and expand to other mountain tops." 

 Lila's team raised an astonishing $133,000 for their climb.  She is turning her journey into a documentary film and already has her sights set on a new climb: Mount Everest.  Lila and her oncologist were interviewed after their climb for this NBC segment.

* * * *

Don’t miss this opportunity to hear Lila Javan speak by registering today for the FREE North Texas Cancer Expo that will be held on Saturday, September 16th at the Omni Hotel in Dallas. 

Tuesday, March 28, 2017

Student of the Year Candidate: Edward Vissoni



The 2nd Annual North Texas Student of the Year program boasts a strong class of high school candidates this year.  These students are currently competing in a six-week fundraising campaign to raise funds for and awareness of The Leukemia & Lymphoma Society (LLS).  Lamar High School student Edward Vissoni is one of the candidates and introduced himself and discusses why he chose to compete in this campaign this year.

What interested you in applying for Student of the Year?
I am a survivor of stage 4 non-Hodgkin's lymphoma and personally know what it's like to go through the treatment of a life-threatening disease.  It is only natural for me to want to join the fight so that some day there will be a cure.

What other organizations or extracurricular activities are you involved in?
Besides the Student of the Year campaign, I am also a member of my high school band.

What are you hoping to achieve while participating in this campaign?
I hope that through this competition I will gain experience about what it means to raise money for others and to meet people whose lives have been affected by cancer. 

Where are you planning to go to school next year?
I will be going on a church service trip as a missionary for The Church of Jesus Christ of Latter-Day Saints.  When I return, I hope to attend University of Texas at Arlington and major in biomedical engineering.

Favorite Quote: 
 "Arise; for this matter belongeth unto thee: we will also be with thee: be of good courage, and do it" - Ezra 10:4

The 2017 Student of the Year Grand Finale will be held on Friday, April 7th at the Renaissance Hotel Dallas.  Tickets and tables are still available for purchase.  Click here to buy tickets and learn more about the campaign and its candidates.

Wednesday, February 8, 2017

Finish YOUR Race: An Interview With the Author


Don Armstrong, a leukemia survivor and ardent volunteer and advocate for The Leukemia & Lymphoma Society (LLS), released his book Finish YOUR Race earlier today.  (Purchase it now on Amazon.)  It chronicles his journey from the moment he heard "you have cancer" to now.  His stories will inspire people with strategies and lessons he learned to accomplish their goals.  

Below Don answers a couple questions about the book and what compelled him to write it.

Why did you feel the desire to write this book?
I faced an illness eleven years ago that could have taken my life. My cancer journey was filled with uncertainty and challenges that tested me on a daily basis.  I learned a lot about myself and life on this journey.  I wrote Finish YOUR Race to share the extraordinary lessons and strategies I learned during my journey.  I won’t want anyone to experience what I did with cancer, however, I would like everyone to know what I learned along the way.

What about this book is different than other motivational books?
This is a terrific question with a fairly simple answer.  I lived every minute of every hour of every day of this journey. My book is about real life experiences of this journey and the impact it had on me.  This journey changed almost everything about me – priorities, goals, directions and motivations.  I share these revelations in hopes that they will have a positive impact on the reader.
           
What do you hope people will take away from this book?
Setback can affect all of our lives to varying degrees. It is my hope that the reader will be equipped with strategies to empower their life and overcome any setback.  In the final analysis it’s not the setback but the way it’s handled that determines who we are in this world. Ultimately, it’s never too late to make a difference in yourself and others.  With courage, focus, and a positive spirit, you can discover, or rediscover, what living your best life means to you.

How did LLS play a role in your story?

The advancements made by LLS, since it was founded in 1949, made it possible for me to be alive today.  All of the dollars raised since 1949 led to the advancements such as chemotherapy, stem cell transplantation and so much more.  I don’t know that I would be here today if it wasn’t for the advancements and successes of LLS.

Don is donating 10% of his book sales TODAY to LLS.  Pick up your copy online by clicking here.

Friday, May 13, 2016

MWOY Candidate: George Meza


George Meza, a blood cancer survivor and member of the North Texas Board of Trustees, is currently fundraising as a candidate of the Man & Woman of the Year (MWOY) campaign.  Read below as he introduces himself and why he is so passionate about this campaign.

"I have been supporting The Leukemia & Lymphoma Society (LLS) since 2006.  My support started by participating in the Society's Team in Training sports endurance program.  Over 10 years I have completed approximately (10) 100 Mile Cycling events, (5) Triathlons (4) Marathons all the while raising over $60,000 for the LLS mission of finding a cure for blood cancers.  Over the last 3 years I have also served on The Leukemia and Lymphoma Society's Board of Trustees. 

In 2009 I was diagnosed with Follicular B Cell Lymphoma a non-curable blood cancer.  Click on THIS VIDEO  to learn about my cancer journey and how it has enriched my life.   Learn more about me and my fundraising efforts on my MWOY fundraising page."

The North Texas Man & Woman of the Year campaign wraps up with a black tie Grand Finale Gala on Saturday, June 18th.  Reserve your table today.

Monday, May 9, 2016

MWOY Candidate: Loan Huynh


Loan Huynh, a two-time leukemia survivor and member of the North Texas Board of Trustees, is currently fundraising as a candidate of the Man & Woman of the Year (MWOY) campaign.  She has been involved with The Leukemia & Lymphoma Society (LLS) for a number of years as the Big D Climb co-chair and patient access volunteer.  Below she talks about how you can support her MWOY fundraising efforts.

"As a two-time blood cancer survivor, I know firsthand the benefit of research around this often deadly disease and am grateful to be LIVING proof that the research funded by LLS is working!  

For the last eight years, I have dedicated myself to working to help fund the research of the best and brightest blood cancer researchers around the world.  As an AML survivor, I see the investment LLS is making into defeating this incredibly deadly disease through their Beat AML initiative and am honored to be able to contribute to the effort to cure the disease that tried to take my life ...twice!

Want to help me?  It's easy and delicious!  Meet me at Twisted Root Burger Company at the Shops at Legacy in Plano, TX on Saturday, June 10th between 5:00 - 10:00 p.m. and 10% of all food purchased during that time will benefit my fundraising efforts.  Mention LLS at checkout and your meal will not only go towards my MWOY fundraising efforts but towards funding much needed cures for blood cancers.

Learn more about me and this event on my MWOY fundraising page.  I hope to see you, your friends and family at Twisted Root on June 4th.  Just think - for just one day, one delicious cheeseburger at a time, we can help support people fighting cancer!"

The North Texas Man & Woman of the Year campaign wraps up with a black tie Grand Finale Gala on Saturday, June 18th.  Reserve your table today.





Monday, May 2, 2016

Student of the Year: Meet Your Winner

2016 candidates (left to right): Kennedy Beavers, Erica Mellon, Khirstyn Vu,
Will Jeffers, Christopher Caldwell

The Leukemia & Lymphoma Society (LLS) is proud to report the very successful launch of its Student of the Year campaign in North Texas.  A group of five dedicated and driven local high school students raised more than $63,000 in six weeks!

Will Jeffers, a sophomore from Hill School in Fort Worth, raised more than $27,000 and was named the 2016 North Texas Student of the Year.  He is a blood cancer survivor and shared his personal story during his campaign.  Will was awarded a $5,000 college scholarship from LLS.

Erica Mellon, a senior at John Paul II High school in Plano, was the runner up.  She raised more than $23,000.  She participated in this campaign in honor of her mother, a blood cancer survivor and former Spirit of Tom Landry Award winner.  Erica won a $2,500 college scholarship.

Kennedy Beavers, Christopher Caldwell and Khirstyn Vu all received $1,000 scholarships for their fundraising and awareness efforts as candidates.

The success, creativity and ingenuity of the Student of the Year candidates far surpassed all expectations of the North Texas staff and Board of Trustees members.

Recruitment is already underway for the 2017 Student of the Year campaign.  High school sophomores, juniors and seniors are eligible to raise money for LLS and win college scholarships.  Learn more about the campaign here or contact Paige Wiebler.

Monday, April 25, 2016

The Motivation Behind Team Fight Like Hell

Team Fight Like Hell organized a golf tournment to raise money
for their Light The Night Walk team in Ann Marie's honor.
They raised more than $19,000!

Ann Marie Herbst, an acute myeloid leukemia (AML) survivor and Fort Worth Light The Night Walk honored hero, recently shared her personal story at the Fort Worth Corporate Recruitment Event.  Read her script, which brought the audience to tears.

"My name is Ann Marie Herbst and I am an acute myeloid leukemia survivor.  At the time I was diagnosed I was a seemingly healthy and very happy 29-year-old.  My husband, Jay, and I had a 15-month-old baby girl and hopes of expanding our family.  Fortunately, the desire to have another child would be what would take me to the doctor for blood work, as I had no other symptoms. 

Unfortunately, instead of getting exciting news of a new baby, we were faced with the shocking and heartbreaking news of a cancer diagnosis.  I know that bad news never has good timing but receiving the call on a Friday made for a very long weekend.  On Monday I went to a clinic in Fort Worth.  I received my first ever bone marrow biopsy.  Looking back I am glad I didn’t know what was coming and I was so desperate for someone to help me that I was willing to fight through any amount of pain.  The following Tuesday I was admitted as a patient at UTSW in Dallas.  Unfortunately they do all their own testing so I had to have my second biopsy.  At the time I was so relieved to be in a doctor’s care and I had no idea I would suffer through 4 intense rounds of chemotherapy, spend 2 nights in the ICU with the fear of heart failure, get the flu with no immune system, that I would see people come into the hospital to never return home or that I wouldn’t be able to see my baby girl for 87 nights.   As every loving mother knows, putting yourself before your child goes against everything you stand for but my choice was now or forever and that answer was simple.  I had to get better so I could have her forever.  People ask me all the time what the hardest part of cancer was and I can say without a doubt that for me putting motherhood on hold was the most heart wrenching.  At the same time, I also know how incredibly blessed I was to have her to go home to.  

Prior to starting treatment, I spent 5 days in the hospital waiting on bone marrow results.  At the time I felt like I was sitting around waiting to die.  What I know now is that I am incredibly blessed that my case was an urgency but not an emergency and that I had that time to wait on the results because the doctors were able to diagnosis my specific genetic mutation and treat me accordingly.  As strange as it sounds, my doctor was happy with my mutation because the research for my diagnosis have come so far and the results of the specific treatment I received are extremely promising, which was surprising for an AML diagnosis.  In the past, an AML diagnosis yielded grim results and protocols remained practically the same for nearly 40 years. Thanks to the more than $8 million that LLS has invested in AML research in the past few years, some of which went to researchers at UT Southwestern, that is rapidly changing and my story had a happy ending. We are on a path toward cures, and I stand before you today because my dream is to live in a world without cancer and in the meantime, for every cancer patient to have the same chance at fighting as I did and we simply can’t get there without funding and research. Thank you for your time and for allowing me to share my story. I feel incredibly blessed to be able to take such a painful experience and turn it into something so positive."  


Survivors like Ann Marie are what motivate the thousands of LLS supporters and volunteers in North Texas to keep fighting and fundraising to fund much needed cures.  Motivated by Ann Marie's story?  Walk alongside Ann Marie and her team, Fight Like Hell, at the Fort Worth Light The Night Walk on Sunday, October 30th. 

Tuesday, April 19, 2016

North Texas Man & Woman of the Year: Meet the Candidates

The 2016 MWOY candidates at kickoff.
(L-R) Michael Leyton, Amanda Whitelaw, George Meza,
Loan Huynh, Shannon Ridley, Leigh Costa, Dr. Brian Berryman
(missing: Jeanne Buck)
North Texas Man & Woman of the Year Chair Kim Alexander introduced the 2016 candidates at Sambuca during the official MWOY kickoff on April 12th.  We are pleased to introduce you to this group of dynamic and driven candidates who will spend the next nine weeks campaigning on behalf of The Leukemia & Lymphoma Society.  

Dr. Brian Berryman  
Dr. Berryman is the attending physician for the Blood and Marrow Transplantation Services at Baylor University Medical Center and is the Medical Director of the Blood and Marrow Transplantation Services at Medical City Hospital Dallas. He also serves as a member of the North Texas Medical Advisory Board.

Michael Leyton
Michael is the owner of his own business, MLeyton Co and works as a freelance marketing specialist in the Dallas area. Michael and his sister are both blood cancer survivors.

George Meza  
George is a senior manager at Accenture and a survivor of follicular B Cell lymphoma. He is also a longtime cycle coach for LLS’s Team In Training Program and a member of the North Texas Board of Trustees.

Shannon Ridley
Shannon is an Account Executive with Amazon Web Services and is running in memory of his brother who fought and lost his battle against multiple myeloma.

Jeanne Buck
Jeanne works for Takeda Pharmaceuticals which produces multiple blood cancer related drugs, including drugs specifically geared towards multiple myeloma. Jeanne is participating in honor of her brother who is a lymphoma survivor. 

Leigh Costa  
Leigh owns her own sports marketing firm, Costa Sports Marketing, and donated her bone marrow back in 2014 to help a patient battling leukemia.

Loan Huynh. 
Loan is an account manager for Imagine! Print Solutions and is a two-time leukemia survivor.  She serves on the North Texas Board of Trustees.

Amanda Whitelaw
Meet Woman of the Year candidate, Amanda Whitelaw.   Amanda serves as Vice President of New Business Development at United Way of Metropolitan Dallas and is running in honor of anyone currently feeling the negative impact of a cancer diagnosis.

Friday, April 1, 2016

Team Five Alive: More Than the Cheerleader


Kelly Nesbit, co-captain of Team Five Alive, faces a unique challenge as the team rolls into the third month of its goal of raising $100,000+ for The Leukemia & Lymphoma Society (LLS) in one year through Team In Training (TNT).  Kelly transitions from the role of her husband's cheerleader to being front and center of the action.  Read below as she chronicles her experience.

March 17, 2016
It’s only 3 days away from what will be my 3rd half marathon ever and I once again have managed to let the sinus/allergy/congestion ‘crud’ find me just before the BIG day. Feeling sorry for myself because I am not feeling well, have not ran in the past 10 days and fearful I will fail.  I question why I have committed to such a journey. You see, prior to May 2015, I opted to be the cheerleader – not the participant.  I have been saying to myself over the past few days “being the cheerleader was a whole lot easier”! Don’t get me wrong, the cheerleaders play an important role too – we NEED the cheerleader to help us all meet our goals!  Needless to say, I was not excited about enduring 13.1 miles in just a few days!

Then, these words fell before me on a social media page of one of my own daughter’s close friends:
My sister-in-law is in the final stages of fighting cancer. Please pray for our family as we say good-bye.
Her battle has brought out some deep emotions I was not expecting. Hurt, anger, fear. Part of me feels like I’m reliving a moment in my own life, one that I've suppressed for a long time. My mom died of cancer when I was 13. She was 31.
As a daughter who lost her mother I feel so much for her girls and the pain they are going through. I remember my mom in the final stages of her battle with cancer. The last time I saw her I was so shocked by her appearance, how quickly she had deteriorated. So frail, she couldn't speak but kept trying desperately to say something. I was so afraid and overwhelmed, I kept thinking "that's not my mom, it can't be."
I understand that look and her desperation so much more now that I’m a mother. I know all the things she wanted me to know but wasn't able to say. The weight of it all is immeasurable, watching time slip away from you. I can't imagine the feelings and fears she has experienced these past few months.
I don't want to let cancer steal the spotlight. I don't want to let cancer be the mark of memory on a person whose life is so much bigger than that. Cancer shouldn't cast a shadow over someone who shines so bright.
The words brought tears to my eyes and strength into my soul. I cannot imagine saying good-bye to any of my loved ones, especially my children.

Sometimes the memory of David’s fight with CLL is clouded by his incredible success. We are so blessed! BUT, I know I made the decision last year to be a fighter for those who can’t. At the same time, I can continue to be a cheerleader for those who have won. So, I will march on.
 Dallas Rock ‘n Roll – look out – the Nesbits are coming to play!

March 22, 2016
Sunday was game day! I was still not feeling 100%, but I was committed and that meant there was no turning back. David promised that he would stay with me the entire run – so the thought was “let’s do this!"

I dressed in layers because it was a chilly 38 degrees when we left our house. I carefully selected items that I would be alright with dumping should I need to. I checked and double checked that I had everything I needed for a successful day. Though, I could feel the anxiety start to build.  Our plan from the moment we signed up to do this race was to treat it like a training day – so I had to remind myself of the plan over and over again in attempts to calm down.

We arrive! We manage to find my sister and other TNT teammates in the massive crowd. We all huddled together in attempts to keep warm while standing in our corral. Words of encouragement are shared. The National Anthem plays…..and we are off!

As we are winding through the streets, I can feel slight rays of confidence. I am feeling strong, not feeling out of breath (which was a concern from the ‘crud’) and loving that I have both my husband and sister with me.  Now if someone could just turn up the heat a few degrees! Brrrr!

We near the 5 mile marker and I become nauseous. David encourages us to walk. I feel defeated! So I had to remind myself – this feeling CANNOT be worse than chemo! This CANNOT be as bad as saying goodbye to my loved ones! Just put one foot in front of the other and you will get to the finish line! Sadly, not everyone battling blood cancers can say that with a fair amount of confidence. David and I then held hands and snuggled up together to keep warm as we walked. While our finish time was not a ‘PR’ based on time – it was a ‘PR’ based on the experience. It was tough. It was hilly. It never warmed up. BUT we stopped to take pictures and act a little silly and for the first time, WE FINISHED TOGETHER!

Team 5 Alive
In celebration of David’s 5th year anniversary of the completion of chemo I have committed to run 5 half marathons. The Dallas Rock ‘n Roll was the first of the 5 events that we will complete together this year.

As the Co-Chair to Team 5 Alive – my motto is to never give up! We have so much to be thankful for, yet so much work that is yet to be done! I am thrilled to say that as of this very second Team 5 Alive has raised $46,066. This amazing group of individuals has raised nearly half of our goal in just 8 weeks! I am over the moon grateful for what this team has done!

Come join us at Community Brewery Company for the month of April and enjoy a ‘Charity’ beer. Until next month, may you all find peace, love, health and happiness!


________________________________________________________________________________

 

Kelly Nesbit is the co-team captain of Team Five Alive and will be posting monthly about their goal to raise $100,000 for The Leukemia & Lymphoma Society in honor of  David's fight.  

Tuesday, March 22, 2016

Meet the Coach: Bill Luisi

Bill Luisi wears many hats for the North Texas Chapter of The Leukemia & Lymphoma Society (LLS).  He is survivor, honored hero, Team In Training (TNT) coach/mentor/participant, Outreach Chair for the Mission Task Force, to name a few.  He is currently one of the coaches for the SPRUMMER season and introduced himself in his own words:
Tell us about your background/experience.My active involvement with LLS began four years after I was diagnosed with CCL in 2004, when I was asked to be the honored hero for a Leukemia Cup Regatta.   After the event I mentioned to Libby Kaczmarek, the campaign manager, that I just bought a road bike.    She responded by telling me to check out TNT and I immediately signed up for the 2011 AMBBR in Lake Tahoe.    As a lifelong athlete, TNT initially created a way for learn road cycling and do something positive for the cause of curing blood cancer.   We had a large team that year from North Texas and many personal friendships came from those months training together.   The coaching was exceptional such that by June we were truly ready to ride 100 miles.   The inspiration dinner with everyone from all over country was overwhelming, and cemented my belief that I wanted to continue to be involved with TNT.  
Why did you choose to coach for TNT?
After my first cycling and first triathlon with TNT all in 2011, I wanted to continue to be a part of the program while not able to fundraise every season.    This led me to get involved as Team Mentor.   This was certainly helpful and rewarding, however I saw I could make an even greater contribution as a coach.   So I started out as an assistant coach for the marathon team.    Again my expectations were exceeded in the amount of satisfaction I gained from seeing each team member grow in strength and confidence to finally be able to cross the finish line.
Why do you do marathons, century rides or triathlons?
Throughout my life I have been a person who looks for and enjoys new challenges and experiences.     I ran almost every day to train for my sporting interests, which have been many.   I also enjoyed completing a number of running events focused on some charitable cause.    Cycling never seemed to get my attention, but after my TNT experience, I was hooked.    This led me to see how I could take it to the next level and compete in triathlons.   Some may not understand this, but training and competing is a joy filled experience for me.     It fulfills a need in me to perform physically and mentally, to test my limits, and to reach a challenging goal. 
What is your favorite thing about TNT?
TNT is really about getting to know like-minded goal oriented people, who not only care about themselves, but more importantly care about others.    I find it very satisfying and pleasing to share the belief that by our efforts we can and we are making a difference in the lives of others.    As such, I feel I am actually fulfilling a higher purpose for my life.
What would you say to someone thinking about joining TNT?
If you have any desire to commit to a training program for your health and wellbeing, there is no better place to do this than with TNT.    The program is built for all levels of fitness and ability, so there should be no fear of being left behind or unsupported.     And the big plus is that you are doing this with the added purpose of helping others who are suffering and even dying because we still lack the proper treatment.     TNT is your way -- your chance to make a difference in “your” world.
# 1 Piece of advice: 
Don’t let the fundraising obligation intimidate you.    The mission of the LLS is being met by people like us who aren’t afraid to ask for help, because we know that money is going to the right place and that people, like me, are alive today because of the research funded by the LLS.

Tuesday, March 1, 2016

Team Five Alive: An Introduction


2016 is a big year for Kelly and David Nesbit.  It marks five years since David was diagnosed with chronic lymphocytic leukemia (CLL).  To commemorate and celebrate how far his health and they have come in those five years, the Nesbits are launching Team Five Alive with the goal of raising more than $100,000 in David's honor through Team In Training.  Why $100,000?  That amount ensures that the Nesbits will be able to name an LLS research grant in David's name and direct the funds towards blood cancer research.  

Below Kelly introduces their family and talks about what it is like to launch a year long fundraising blitz. 

"So many of the stories we hear about those affected by blood cancers bring us to tears. I am happy to say this one will give you hope! A reason to celebrate!  You see, 5 years ago OUR HONORED HERO, DAVID NESBIT walked into a chemo room for the first time, 6 months later he walked out and has never returned! We ALL have high hopes he will NEVER go back!

This is his story.
David Nesbit, a father of six beautiful children, was diagnosed with Chronic Lymphocytic Leukemia (CLL) in 2009. David’s chemo treatment plan was for 6 months – 3 days on, 27 off. Watching him go through his first round appeared was the hardest. So many unknowns were facing him, his entire family and anyone who loved him! How would he feel? Would he lose his hair? Which by the way he had Team in Training Teammates that said they would shave their heads if he did! Would he need to be away from work for long periods of time? But the biggest question was, WAS he going to be OK?   
His kids had thoughts of fear, fear that he was going to die. Fear that their world was ending. They refused to imagine a world without him as they simply had not had enough time together. (His youngest child was only 7 years old). They were angry and sad and afraid…

David quickly got grasp of how his body responded – actually we joked how it was quite similar to morning sickness – one month of chemo for each child. LOL! He experienced nausea – he had food cravings (mostly salt!) His sleep pattern was off.  But, he always kept a positive attitude! There were days he even wanted to go for a run after chemo to show his body who was boss! He NEVER showed doubt! The last day of chemo was the only time he seemed to be impatient during the whole process. All he wanted was be DONE! And he wanted to be done NOW!

August 2011 David’s chemotherapy treatment ended. Every 6 months we hope and pray the Dr. will give him another positive report. While today there currently is not a cure for his blood cancer, the prognosis has much improved for those diagnosed with CLL. Amazingly though, because of research and the development of treatment in recent years, David’s oncologist believes that he may NEVER have to go through intravenous chemo treatment again.  His treatment has allowed him to be with us. Since his last treatment, he got married, watched 3 daughters get married and two grandbabies have been born. He has witnessed high school graduations, sent kids off to college and has celebrated several birthdays, anniversaries and holidays – ALL because of the amazing support through LLS.

Talk about a celebration!?
As excited we all are for David and those that have found his same success when battling blood cancers – we, Team 5 Alive, have made a commitment to march on (or run, or bike, or swim) until there is a CURE!

This year, in celebration of David we have committed to completing endurance events all over the country and raise $100,000 for cancer research and patient aid.  As a member of Team 5 Alive we will fundraise by hosting charity events, working golf tournaments, cheering at marathons and any way that we think of that will help us to meet our goal of $100,000. We will do this while training in the cold and in the heat and encourage our friends and loved ones to do the same!

Stay tuned as we share the adventures of Team 5 Alive! We hope to see you all out there cheering us on as we cross this BIG FINISH LINE!"

_________________________________________________________________________________


Kelly Nesbit is the co-team captain of Team Five Alive and will be posting monthly about their goal to raise $100,000 for The Leukemia & Lymphoma Society in honor of  David's fight.  

Monday, February 29, 2016

Light The Night T-Shirt Competition


The 2016 Light The Night t-shirt competition starts today!  The North Texas Chapter is honored to be home to a past t-shirt design winner as well as a finalist and we would love to have another finalist from our area this year.  The winning entry will be on the front of hundreds of thousands of participant and survivor t-shirts at walk sites across the country this fall!

Below are the submission guidelines:

  • Design must be inspired by the Light The Night Walk (LTN) or the mission of The Leukemia & Lymphoma Society (LLS)
  • Design only the front of a plain t-shirt
  • Must visibly and clearly include the LLS/LTN logo lockup (example below)
  • Up to three different designs will be accepted, but they must be submitted as separate entries
  • Design must be wholly original

A full list of submission guidelines can be found here.   Once your design is completed, submit your artwork online here.

Designs will be judged on the following criteria:

  • Concept/originality
  • Captures the spirit of the LTN Walk
  • Striking and memorable design
  • Eye-catching and visible from a reasonable distance
  • Completeness of design - must be ready for print
Additional information about design specifications can be found here. 

All designs but be submitted by 2:00 p.m. (CST) on Friday, March 18th on the LTN Facebook page.

There are two rounds of voting.  During the first round, two designs will be chosen by a panel of LLS staff.  The two winning designs will then be posted on the Light The Night Facebook page where page fans can vote online.  The design with the most number of votes will be selected.

If you have any questions about the process, please contact your local staff at (972) 996-5926.

Our fingers are crossed for another North Texas finalist! 


Friday, March 27, 2015

Hodgkin's Lymphoma Survivor on AMERICAN NINJA WARRIOR


Craig Cornish, an 8-year blood cancer survivor and longtime North Texas Team In Training (TNT) participant and honored hero, is tackling a new challenge: AMERICAN NINJA WARRIOR.  Craig has been selected to participate in the TNT  show's 7th season.  Below he shares his personal battle with blood cancer as he prepares to film on March 27th and 28th in Houston, TX.  Craig says he is dedicating his run to all patients and survivors.  Good luck, Craig! 

"In 2003, I was 14 years old and a high school freshman.  I had been experiencing random fevers for about a year and had no explanation of what was going on other than 'maybe it was just allergies.' After one particular episode, my family went back to the doctor to see if something could be explained. While listening to my breathing, the doctor noticed I had constricted breathing like something was blocking it. He ordered to have a CT scan, thinking I might have pneumonia. After the scan was over, a new doctor that I had never seen before came in and told me that what I had was far worse than pneumonia.  At this point it was too early to tell what it was, so I had test after test and biopsy after biopsy trying to discover what this foreign thing was in my body. Finally the diagnosis came through, I had Stage IV Hodgkin's Lymphoma.

Now at 14 years old and having cancer, of course the first reaction that came to my mind was, 'why?' Utter confusion swept my family and I. All we could do now was proceed with treatments. Throughout my entire battle with cancer, I experienced 14 different types of chemo, three months of radiation, and two bone marrow transplants. The cancer started off as a tumor the size of a softball in the middle of my chest. Eventually it went away but then it came back inside my lungs. At this point we decided to do a stem cell transplant, meaning reinsert my own bone marrow after hitting me with a huge dose of chemo to kill off everything inside of me. It worked, but only for a short year. Later that year I was experiencing an agonizing pain inside my hips and the cancer had come back, inside my bone marrow this time.

At this point in my cancer journey, there were not any more treatments I could go through. I had been through every type of drug there was for my cancer and it was still coming back. As a last resort, we needed a donor bone marrow transplant and a new drug.During my battle there was a very strong chemo drug they had used called VP-16 that created an allergic reaction that almost killed me twice.  It was then that a miracle occurred, through all the research The Leukemia Lymphoma Society funds to find new drugs and treatments, a brand new chemo was developed and it was for my type of cancer. We did a trial run through to test to see how effective it would be, and it reduced the cancer enough that the doctor decided to just hit me with the full blast of it and go with the transplant.

While this is without a doubt the true test of endurance in my life, it was only the beginning for me. I have always been an active person and now after all this,  I was not about to give up on being active and exercising. After the transplant, they told me I would be in the hospital for at least 3 months, and if I was doing well and beginning to eat, I could leave to stay in the Ronald McDonald house down the street since my home was too far. They said I would probably be at the Ronald McDonald house for at least another 3 months recovering and that maybe I would be able to go home after that. Well I proved everyone wrong and defied the odds. I was in the hospital 1 month, and the McDonald house for 1 month and then I was back at home. All because I had the drive that I did not want to be contained in that prison. I hated the fact that I was now limited in what I could do and it just pushed me to try that much harder. 

After finally making it home, I was still home bound trying to let my immune system recover by not exposing myself to too many things that would get myself sick. Finally though I was cleared to go back into school and finish my 5th year of high school, as the very 1st year I made it through an entire year of high school without having to leave from getting sick again. Four years of treatments and now my life was ready to begin. I now started to try and get my endurance and athletic ability back, and man was I behind. I was on the soccer team and thankfully the coaches knew exactly who I was and what I had been through, so they let me push myself, and do what I could just to get stronger. Imagine though that you have to watch everyone on the soccer team busting their butts running miles and laps around the field, and I can’t even make it around the soccer field once without wanting to fall over and pass out. I hated that. I hated that everything I was doing seemed so insignificant to everyone because some people had no idea what I been through, and now could see that I looked just as healthy as everyone else, but was far from it. Some people would even see the coaches let me have breaks when no one else could and I just hated the fact that I needed the break. In my mind everyone sees you as slacking off and not giving everything you’ve got. So many times I wished I could just magically get better, but I knew it wouldn’t happen. I also knew this was the rest of my life. I would never be at the same caliber everyone else was, but I didn’t care. As long as I tried, I now had a new mission in life: to push the survivors limits.

So I fight every day to make myself better, and better someone else’s life. I run half marathons, triathlons, and 12 mile obstacle course races all in the name of survivors. I speak at mission moments for fundraising groups, sharing my story, and then going out there and training with them to run half marathons. To this day, I only have 72-74% lung capacity. During my treatment days it was down in the 60s because of the cancer and scar tissue. All the exercise I have done has led some tissue to regenerate, but I will never be at full capacity like someone else. Along with that, my heart has had so much pass through it as well, along with every other organ in my body. I have to be checked the rest of my life to make sure something new doesn’t grow, but also be aware of the toll exercise now has on my body. This is why fatigue sets in really easily on me. So I fight to keep myself in great shape as I possibly can for those survivors out there who may not be as fortunate as I have been. Maybe they just need the proper motivation, and I would be happy to be that motivation. At the trainings and mission moments I've been to, people don’t call me a cancer survivor. They call me a cancer warrior and I am happy and honored to live up to that name and continue the fight. Now I am going to represent all other cancer survivors and warriors at American Ninja Warrior and show the world exactly what survivors can do. My life wasn’t over when I was diagnosed, my life had only just begun!"