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Showing posts with label Mission. Show all posts
Showing posts with label Mission. Show all posts

Wednesday, August 2, 2017

"My personal goal was to live until the next LLS conference because each year the research was improving."


Calvin Harkless and his wife make the drive from Edmond, OK to Dallas, TX every year to attend the North Texas Cancer Expo presented by Briggs Equipment.  They make a point not to miss it.  Why?  We'll let Calvin tell you in his own inspiring words.

"I was diagnosed December 24, 2010 with stage four multiple myeloma, cancer of the bone marrow. On January 5, 2011 I started weekly IV chemo infusions. I had no idea it would be four years and four months later before being taken off of all cancer treatment and drugs. 

My wife and I made it our mission to attend the North Texas Cancer Expo (formerly the North Texas Blood Cancer Conference) sponsored by The Leukemia &Lymphoma Society (LLS) each year. In 2011, we attended our first LLS conference and was overwhelmed by the information on Multiple Myeloma and other blood cancers. While attending the various sessions I recall thinking “I have a new paradigm for a hero.” The men and women, who dedicate their life to research and technology to find a cure for cancer, there can be no higher calling.

Having access to the top researchers in blood cancer, face to face Q&A with pharmaceutical representatives, networking with other blood cancer patients and care providers and hearing the many inspiring testimonies were invaluable. The LLS conference became my Christmas, each year anxiously waiting to hear about the new drugs approved and future research on blood cancer. My personal goal was to live until the next LLS conference because each year the research was improving.   

The highlight of attending the LLS conference was in 2012 after the FDA approved Velcade to be administered subcutaneous. The announcement was made during a presentation at the conference. At my next appointment with my oncologist, I shared the information on the FDA approval of Velcade to be administered subcutaneous and provided supporting documentation collected from the conference. This began the process of changing the hospital protocol from IV to subcutaneous injections. The following week the pharmaceutical representative confirmed the FDA approval during a doctor visit. I became very emotional having my chemo infusion for the first time subcutaneous. Each year after attending the LLS conference I would share with my oncologist the current research on Multiple Myeloma.

I was taken off of cancer treatment and drugs on May 2015.  In August 2016 no multiple myeloma cells were found active in my body. My wife and I will always be an advocate for The Leukemia & Lymphoma Society."

Don't miss your opportunity to participate in the FREE 2017 North Texas Cancer Expo presented by Briggs Equipment.  Registration is now open for the expo as well as the general and healthcare sessions.  The event is free but requires registration.  

Saturday, September 16th
Omni Hotel, Dallas, TX
8:00 a.m. - 3:00 p.m.



Wednesday, July 19, 2017

North Texas Cancer Expo: Full Schedule Released



After much anticipation, the full schedule for the 2017 LIVING YOUR BEST LIFE North Texas Cancer Expo presented by Briggs Equipment is now available!  Review the sessions available at this FREE event on Saturday, September 16th and reserve your seats by registering today!



8:00 AM - Expo & Registration Opens
9:00 AM - 9:30 AM - Opening Session
Welcome
Patricia Thomson, Ph.D., Executive Director North Texas Chapter
Don Armstrong, Expo Chair & Survivor
9:45 AM - 10:15 AM - Concurrent Morning Breakout Sessions
Movement and Yoga
Start your day with an energizing easy yoga session with tips on how to stay fit.
The New Normal
Join keynote speaker Lila Javan as she discusses life after cancer and finding balance in survivorship.
10:30 AM - 11:00 AM - Concurrent Morning Breakout Sessions
Disease Updates
Hear the latest in groundbreaking research updates from a panel of top oncologists in North Texas.
Finish Your Race
Author and acute myeloid leukemia (AML) survivor Don Armstrong empowers you to find your true purpose and live with an unstoppable passion.
11:15 AM - 11:45 AM - Concurrent Morning Breakout Sessions
Cancer Prevention Through Nutrition
Enjoy an educational cooking demonstration and tasting with certified nutritional coach and culinary instructor, Patricia R. Thomson, Ph.D.
Let's Talk About Cancer
A diverse panel of caregivers and survivors discuss the lines of communication patients face during cancer diagnosis and treatment. 
12:00 PM - 1:00 PM - Lunch & Keynote Speaker
Lunch Welcome
Patricia R. Thomson, Ph.D., Executive Director, North Texas Chapter
Dr. Brian Berryman, Texas Oncology
Keynote Speaker
Lila Javan, Survivor
1:15 PM – 1:45 PM – Concurrent Afternoon Breakout Sessions
Food Saved Me
Let Katherine Lawrence show you how you can cook faster, retain more nutrients, remove toxins and reduce food costs.
Side Effect Management
Join Walgreens Specialty Pharmacy, and LLS partner, as experts share the best ways to manage the effects of cancer treatment.
2:00 PM – 2:30 PM – Concurrent Afternoon Breakout Sessions
Mindfulness and Meditation
Research shows that meditation can improve everything from memory to mental acuity to anxiety.  Join our meditation coach for tips to use every day.
Survivorship Panel
Survivors and parents of survivors share their experiences and answer questions about survivorship at all stages post-treatment.
3:00 PM – Expo Closes



Friday, June 30, 2017

Beat AML Master Clinical Trial in North Texas


LLS Investing in Cures
The Leukemia & Lymphoma Society is at the center of the Food & Drug Administration's (FDA) innovative decision to allow a nonprofit organization to lead its own clinical trial.  The target: acute myeloid leukemia (AML).  It is the deadliest form of leukemia and has not seen a new treatment option in more than 40 years.

LLS Investing in Patients
LLS is dedicating more than $125 million to the Beat AML initiative, which is focused on creating new treatment options for AML patients.  LLS is harnessing the efforts of geneticists, pharmaceutical companies, government agencies and healthcare facilities in this revolutionary approach to creating new therapies.

LLS Investing in North Texas
Dr. Robert Collins, Jr., a member of the North Texas LLS Medical Advisory Board and LLS-funded researcher, has been charged with the task of leading the ONLY Beat AML trial in the south at UT Southwestern Medical Center Harold C. Simmons Comprehensive Cancer Center.  Dr. Collins is currently accepting newly diagnosed AML patients as part of the Beat AML Master Trial.  Click here to learn more.

Hear More From Dr. Collins
Intrigued?  You can hear more about the Beat AML trial from Dr. Collins at the FREE North Texas Cancer Expo on Saturday, September 16th.  Registration for this session is limited and expected to fill quickly.

 Click on the image below to hear Dr. Collins talk about the Master Trial


Thursday, June 15, 2017

Meet Kristen Rheinlander




Kristen Rheinlander is the newest face that you will see when you come into our Fort Worth Office.  She is managing our Light The Night event in Fort Worth. Kristen has been personally affected by Leukemia and comes to LLS with a strong background in non profits. Below she answered a couple questions about herself:


1. Tell us about your nonprofit background.
I have been involved in numerous nonprofit organizations volunteering for The USO, Defenders of Freedom, Canine Companions for Independence and the Ronald McDonald House of both Fort Worth and Dallas. Volunteering, and now ultimately having my career in nonprofits, brings so much gratification and joy to my daily life. I am so fortunate to be able to help others on a daily basis and really makes every day at the office feel rewarding.


2. What attracted you to The Leukemia & Lymphoma Society?

Leukemia has personally effected my family, and when the opportunity arose to work for an organization that is so strong within the Fort Worth Community, I knew my heart was with The Leukemia & Lymphoma Society North Texas Chapter.



3. What do you think is so interesting about working with teams and individuals in a fundraising capacity?
I love that everyone VOLUNTEERS their time and money to such a worthy cause. As volunteers they have their own personal and unique reason to support our mission, yet the overwhelming goal to bring light to the darkness of cancer. While they could choose to look at cancer as such a dark and lonely space, they instead come together and inspire each other and become a light in each other’s lives.


4. What are you most looking forward to at the Light The Night Walk in Fort Worth?

I am excited to see the Fort Worth community come together and spread hope and joy to one another. While many of them will come as stranger, they all come together for one common mission, and I look forward to seeing friendships formed and fun being had throughout the night.



5. What do you want people to know about you?

I come from both a personal and professional background in sports, where I felt something was missing, so I turned my career to nonprofits. I have always had a heart for helping others and I look forward to making my passion my purpose in the fundraising sector of the nonprofit world. I am thrilled to work for such a worthy cause and can already tell The Leukemia & Lymphoma Society will make my life and heart even that much greater.


You can find Kristen in and out of our Fort Worth office.  She can be reached via email at kristen.rheinlander@lls.org or phone at 817-288-2634.  Welcome to LLS!  We are so excited to have you on board.

Tuesday, May 23, 2017

Meet Makenna: Links Fore Leukemia Honored Hero


The Links Fore Leukemia Golf Tournament presented by Venari Resources is a day of great golf, competition and camaraderie.  Most importantly, the tournament exists to help fund The Leukemia & Lymphoma Society's relentless drive to find cures for blood cancers.

Ten-year-old Makenna has agreed to serve as the 2017 Honored Hero.  She was diagnosed with acute lymphoblastic leukemia (ALL) just days before her 8th birthday.  Doctors quickly learned she had a mutation that made her leukemia more difficult to treat.  She faced 10 different types of chemotherapy, 25 spinal taps, and countless needle pokes.  After 10 months of intense chemotherapy treatment, she is in remission!  Although she continues to receive monthly maintenance chemo through her port, as well as daily chemo pills at home, she is thankful to be back in school and participating in the activities that she loves.

Since her diagnosis, Makenna has embraced her diagnosis and the opportunity to educate other children about leukemia and why it's important to fund research.  As Makenna likes to say, she looks forward to a time when "they can give you a shot to prevent leukemia from ever happening!"
We are inspired by her strong spirit and fierce determination not to let her leukemia diagnosis stop her from enjoying childhood.

Three Ways to Get Involved:
Inspired by Makenna's story to get involved?  Here are three ways you can get involved with the tournament today:
1. Register yourself and your foursome to play in the tournament.
2. Purchase a group of golf balls for the Helicopter Ball Drop presented by Elbit Systems of America
3. Share this post with somebody who would be interested in golfing with us.

Save the Date:
Monday, June 26th
TPC Four Seasons Las Colinas
www.linksforeleukemiadallas.org

Friday, May 5, 2017

Introducing Marla Wilson


The North Texas Chapter is proud to introduce you to Marla Wilson, the newest member of the chapter's leadership team.  Marla is the Senior Director responsible for the Light The Night Walk and the Saint Valentine's Day Luncheon & Fashion Show.  She comes to The Leukemia & Lymphoma Society (LLS) with extensive nonprofit experience.  Below she answered a couple questions about herself:

Tell us about your previous nonprofit experience. 
I come to LLS from Honey Shine, Inc. where I served as the National Executive Vice President.  Honey Shine, Inc. is a mentoring and educational program for school-age girls, based in Miami, FL.  Before Honey Shine, I served as a Senior Director with the American Heart Association's Go Red for Women Campaign, and the Executive Director for the March of Dimes.   I am also the founder of the 1 Percent Circle, an exclusive consulting group that matches high profile clients with mission-related initiatives.

I attribute my passion for service to my parents who taught me the importance of being a positive contributing citizen.

What drew you to The Leukemia & Lymphoma Society? 
The LLS mission and research success driven by this organization are very important to me.  I also have a couple personal connections to blood cancers.  I have a family member currently battling acute myeloid leukemia (AML) and another family member in treatment for lymphoma.

What have you learned about LLS supporters in North Texas during your brief time with LLS?
I have been very pleased to discover that North Texas supporters are very passionate and highly educated on the importance of philanthropy and volunteer leadership.

What are you most looking forward to with the Light The Night Walk? 
I am coming into Light The Night at a very exciting time.  The Dallas and Fort Worth Walks are both adding some really impactful new features to the Walk experience and both are on the brink of explosive growth.  I am happy to be here for both.

What are you most looking forward to with the Saint Valentine’s Day Luncheon & Fashion Show? 
I am looking forward to expanding the exciting possibilities that will bridge generational philanthropy from traditional donors to young professionals.

Marla is the proud mother of twins, Malik and Mijani, both of whom are currently in college in Texas.

If you would like to personally welcome Marla to North Texas, she can be reached via email at marla.wilson@lls.org or phone at (972) 996-5919.

Welcome to North Texas, Marla!

Monday, May 1, 2017

How to Support Man & Woman of the Year Candidates



The Dallas and Fort Worth Man & Woman of the Year campaign is in full swing!  Are you looking to find ways to support the candidates and their fundraising efforts?  You've come to the right place. 

 Below is a full list of the events the candidates have organized to benefit their fundraising efforts. 


Shop for a Cause at St. John
Hosted by: Dean Driver, Dallas
Highland Park Village
Wednesday, May 3rd
6:00 p.m. - 8:00 p.m.
10% of proceeds will benefit LLS


Private Cooking Class with Wine & Chocolate Pairing
Featuring chefs: Jon Bonnell and Kevin Wenzel
Hosted by: Sheila Jackson, Fort Worth
Central Market – Fort Worth
Wednesday, May 3rd
6:30-9:00 pm
4651 West Freeway, Fort Worth, TX 76107
RSVP: Online

Celebrity Bartending Event
Hosted by: Michael Crain, Fort Worth
GRACE
Thursday, May 4th
5:00 p.m. -7:00 p.m.
777 Main Street, Fort Worth, TX 76102
Hosted by: Kimberly Alexander, Dallas
Highland Park Village
Thursday, May 4th
6:00 p.m. - 8:00 p.m.
RSVP: J.Hudson@us.christianlouboutin.com
10% of proceeds will benefit LLS

Shop for Mom at Feathers
Hosted by: Sheila Jackson, Fort Worth
Feathers
2621 Whitmore Street, Fort Worth, TX 76107
Thursday, May 11th
10:00 a.m. - 6:00 p.m.
Portion of proceeds will benefit LLS

Sip and Shop at J. McLaughlin
Hosted by: Sheila Jackson, Fort Worth
J. McLaughlin
Thursday, May 11th
10:00 a.m.- 6:00 p.m.
1612 S. University Drive, Fort Worth, TX 76107
15% of proceeds will benefit LLS

Gogo in a Tutu
Hosted by: Dr. Ken Heym, Fort Worth
ZYN22
Friday, May 12th
6:30 p.m.
3236 W. 7th St.  Fort Worth, TX
100% of class fee will benefit LLS

Kendra Gives Back Party
Hosted by: Darryl Ferguson, Dallas
Kendra Scott at Watters Creek
Monday, May 15th
6:00 p.m. - 8:00 p.m.
20% of proceeds will benefit LLS

NEW!
Shop for a Cause
Hosted by: Dean Driver, Dallas
Hublot Dallas Boutique
8687 N. Central Expressway, Ste. 1332
Thursday, May 18th
6:00 p.m. - 8:00 p.m.
10% of proceeds will benefit LLS

Celebrity Bartending Event
Hosted by: Sheila Jackson, Fort Worth
GRACE
Thursday, May 18th
5:00 p.m. -7:00 p.m.
777 Main Street, Fort Worth, TX 76102 

Painting With a Twist
Hosted by: Laura Norton, Dallas
Painting With a Twist, Lewisville
Sunday, May 21st
3:00 p.m - 5:00 p.m.
RSVP: Online


NEW!
One Drop of Love
Hosted by: Daryl Wallace, Dallas
Perry's Steak House & Grill

2000 McKinney Ave.
Monday, May 22nd
6:00 p.m. - 9:00 p.m.
RSVP: pdg1294@gmail.com

An Evening with Rolando Diaz
Hosted by: Rolando Diaz, Dallas
South Side on Lamar
Thursday, May 25th
6:30 p.m.
RSVP: roe41@hotmail.com

Fort Worth MWOY Grand Finale Gala
Hosted by: The Leukemia & Lymphoma Society
Fort Worth Convention Center
Saturday, May 20th
6:00 p.m. - 11:30 p.m.
RSVP: Brian.Brooks@lls.org

NEW!
We Got the Jazz & the BBQ
Hosted by: Dr. Larry Anderson
Mayfaire Turtle Creek Sky Club
Tuesday, May 30th
6:30 p.m.

NEW!
An Evening with Rolando Diaz
Hosted by: Mr. & Mrs. Bill Taylor
Ritz Carlton Hotel
Sunday, June 4th
6:00 p.m. - 9:00 p.m.

Hosted by: The Leukemia & Lymphoma Society
Ritz Carlton Hotel
Saturday, June 17th
6:00 p.m. - 11:30 p.m.
RSVP: Emile.Blaine@lls.org


If you would like to learn more about any of these events, please contact Emile Blaine at Emile.Blaine@lls.org or (972) 996-5932.

Best of luck to all of the candidates!


Thursday, March 30, 2017

Student of the Year Candidate: Alexandra King


The 2nd Annual North Texas Student of the Year program boasts a strong class of high school candidates this year.  These students are currently competing in a six-week fundraising campaign to raise funds for and awareness of The Leukemia & Lymphoma Society (LLS).  McKinney High School student Alexandra King is one of the candidates and introduced herself and discusses why she chose to compete in this campaign this year.  

What interested you in applying for Student of the Year?I saw this on my school's naviance account under scholarship opportunities originally. When I read the description, I thought it was an admirable cause and saw it as an opportunity to help others and help my education.

What other organizations or extracurricular activities are you involved in?
I am involved with my high school's Kiwanis Club - or Key Club for short. This club is all about helping the community through volunteer service. We actively help everyone from disabled children to low-income seniors. 

What do you hope to achieve while participating in this campaign with LLS?

I hope to gain many skills from this program. I want to be able to talk with others, to rally others, and to support this cause. 

Where are you planning to go to school next year?
I am currently a sophomore, so next year I'll still be at my high school. However, I am still looking for a college that will give me a major in animation and/or the fine arts!

Favorite Quote:
"Logic will get you from A to B. Imagination will take you everywhere." -Albert Einstein

The 2017 Student of the Year Grand Finale will be held on Friday, April 7th at the Renaissance Hotel Dallas.  Tickets and tables are still available for purchase.  Click here to buy tickets and learn more about the campaign and its candidates.

Tuesday, March 28, 2017

Student of the Year Candidate: Edward Vissoni



The 2nd Annual North Texas Student of the Year program boasts a strong class of high school candidates this year.  These students are currently competing in a six-week fundraising campaign to raise funds for and awareness of The Leukemia & Lymphoma Society (LLS).  Lamar High School student Edward Vissoni is one of the candidates and introduced himself and discusses why he chose to compete in this campaign this year.

What interested you in applying for Student of the Year?
I am a survivor of stage 4 non-Hodgkin's lymphoma and personally know what it's like to go through the treatment of a life-threatening disease.  It is only natural for me to want to join the fight so that some day there will be a cure.

What other organizations or extracurricular activities are you involved in?
Besides the Student of the Year campaign, I am also a member of my high school band.

What are you hoping to achieve while participating in this campaign?
I hope that through this competition I will gain experience about what it means to raise money for others and to meet people whose lives have been affected by cancer. 

Where are you planning to go to school next year?
I will be going on a church service trip as a missionary for The Church of Jesus Christ of Latter-Day Saints.  When I return, I hope to attend University of Texas at Arlington and major in biomedical engineering.

Favorite Quote: 
 "Arise; for this matter belongeth unto thee: we will also be with thee: be of good courage, and do it" - Ezra 10:4

The 2017 Student of the Year Grand Finale will be held on Friday, April 7th at the Renaissance Hotel Dallas.  Tickets and tables are still available for purchase.  Click here to buy tickets and learn more about the campaign and its candidates.

Tuesday, March 14, 2017

Student of the Year Candidate: Hayley Gross


The 2nd Annual North Texas Student of the Year program boasts a strong class of high school candidates this year.  These students are currently competing in a six-week fundraising campaign to raise funds for and awareness of The Leukemia & Lymphoma Society (LLS).  Lewisville senior Hayley Gross is one of the candidates and introduced herself and discusses why she chose to compete in this campaign this year.


What interested you about the Student of the Year Program?
I was interested in applying for Student of the Year because it was a great opportunity to raise money for those with cancer and to step up and be a leader in my community. 

What organizations are you currently involved in?
In addition to volunteering with LLS, I am also a member of Lewisville High School's National Honor Society, Interact Rotary Club, and Student Council. I am also the Community Service Officer for the 2016-2017 LHS HOSA (Future Healthcare Workers) Chapter. I volunteer once a week with Aspen Hospice to visit hospice patients in my community, and I volunteer one Sunday a month with my church to teach the pre-K classes.

What are you hoping to achieve through your Student of the Year experience?
While participating in this campaign, I hope to achieve my goal of $8,000, but more importantly, I hope to make an impact in the lives of children and adults living with cancer with all the money and awareness I raise. 

What are you plans for next year?
I am attending Stephen F. Austin next year in Nacogdoches, Texas. I will be majoring in Nursing, and once I graduate, I hope to work in the ICU for a few years before I go back to school to become a Certified Registered Nurse Anesthetist. 

What is your favorite quote?"Have I not commanded you?  Be strong and courageous.  Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go."  - Joshua 1:9

The Student of the Year campaign is a six week program where high school juniors and seniors compete for scholarships and the title of North Texas Student of the Year.  The campaign will end with a Grand Finale on Friday, April 7th.  We wish all the candidates the best of luck!

Thursday, February 2, 2017

Chipotle Day is Coming!



Chipotle Benefit Day is back!  On Thursday, February 16th ALL Chipotle locations in Texas will be donating 50% of proceeds to The Leukemia & Lymphoma Society (LLS).  All you have to do is mention  LLS at checkout or show the cashier this flyer.   The percentages apply to lunch and dinner. 

Raising money for LLS has never been easier or more delicious! 

Chipotle and LLS partnered together a couple years ago and in that time has raised more than $50,000 in North Texas to help fund the research so critical to find cures.  

We are sweetening the deal:
There are a number of ways you can earn $5 Chipotle gift cards:
1. Share our event page on facebook and invite all of your friends to meet you for lunch or dinner on the 16th.
2. Take a picture of yourself at Chipotle and share it on the Facebook event page.
3.  Share the North Texas Chapter's Facebook posts about the event on your page.

The gift cards will be drawn at random.  

We hope you help us spread the news of this delicious fundraiser and plan to eat at Chipotle on February 16th.

Thursday, November 17, 2016

#TNTBECAUSE: Meet Dana Howe

Here is our fifth in a series of posts leading up to the BMW Dallas Marathon. Today we are interviewing Dana Howe.  Dana has been involved with LLS since 2010 when she was diagnosed with Stage IV Non-Hodgkin's Lymphoma.  Read on to hear why she is doing the Dallas Marathon.

1. What made you decide to run the BMW Dallas Marathon?

I was training for the Big Dam 100 Century ride and a staff person (Mariel) came to our training and asked if anyone would be interested in the relay.  Several of us said yes – in fact, five of us said yes.   So we formed a marathon relay team from five cyclists.  This will be my third Triple Crown and my son’s (Donnie Constantine) first Triple Crown.  I crossed the finish line with the cycling team and began training with the marathon team the following Saturday.


2. What does it mean to you that the BMW Dallas Marathon has been named a national event for Team In Training?
 I am so proud to be part of Team in Training knowing the impact they have made on the lives of so many cancer patients and their families.  The LLS staff works tirelessly to provide the best event options, fantastic coaches, and an overall amazing experience for every participant.  I am very pleased that this marathon has been designated as a national event.

3. What got you involved with Team In Training?

I was diagnosed with Stage IV Non-Hodgkin’s Lymphoma in October of 2009.  While I was undergoing treatment my brother-in-law registered and trained for America’s Most Beautiful Bike Ride.  After he successfully completed the ride he challenged my husband and I to join him the following year.  Six months after I went into remission I began training and fell in love with the people and the mission.  I have since completed two marathon events, four century cycling events, and three triathlons.  TNT has become a family mission.


4. Finish this sentence, I do “TNTBecause…”
 I want to pay it forward.  LLS funded research for a drug called Rituxan.  Rituxan was one of the drugs that saved my life and has kept me in remission.  Someone was training and fundraising years ago before I had ever heard of TNT.  Those individuals were directly responsible for the drugs available to me that allowed my recovery.  I am grateful and want to help someone else who is diagnosed.   I am committed to participate in at least one event per year until we have a cure.

5. Tell us about the team you’ve formed to run the relay with.  
My relay team consists of my good friend, Teresa Keenan, my son, Donnie Constantine, his fiancé Ana Valdez Moeller and her sister Daniella Valdez Moeller.  We just couldn’t finish one event without having our sites on the next.  We are already looking to 2017 for a TNT event to follow the BMW Dallas Marathon.  We have named our relay team “Team Kristen” in memory of a friend’s daughter who passed away from a blood cancer.  While there is so much positive news about survival rates and improved treatments we have not won the battle.  We need to stay focused and encouraged until we have a cure.

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Did you know?
  • BMW Dallas Marathon is the longest running race in the state of Texas
  • More than 40 different bands are on the course for your entertainment
  • Stay 2 nights at the TNT hotel and you can skip expo lines and have your packet waiting in your hotel room!
  • Earn Awesome Fundraising Incentives
Join the Dallas Marathon TNT Team or join the 5 Person Relay!  150 people have already taken the challenge.  Contact Mariel Bongiovanni for more details. 

Wednesday, November 2, 2016

National Caregiver Month: How LLS Cares for the Caregiver


November is National Caregiver Month. Caregiving can be a lonely experience. Caregivers often don't feel they should be seeking support for themselves, but the best way to care for a loved one is to care for yourself. There are several ways to reach out to others who are in similar situations or have recently been through a similar experience.

LLS offers a number of helpful resources. For more information about any of the services listed below, contact an LLS Information Specialist.
  • Weekly Online Chat for Caregivers. Our live, weekly online chat provide a friendly forum to share experiences and chat with other caregivers. Each chat is moderated by an oncology social worker.
  • Patti Robinson Kaufmann First Connection Program. First Connection is a telephone support program that links you with a trained peer volunteer who has experienced a similar situation. Anyone with a blood-related cancer, as well as caregivers, is eligible to receive a call or visit. There is no charge for this program.
  • LLS Blood Cancer Discussion Boards. Meet your peers online and share thoughts and experiences on our Blood Cancer Discussion Boards.
  • Family Support Groups. LLS's Family Support Group program is open to patients, family members and caregivers. Volunteer nurses and social workers professionally lead the groups. Contact the chapter nearest you to find out about Family Support Groups in your area.

Getting Information:

Caregivers often become the primary "researchers" for disease information and support in an effort to assist the person with cancer and to help him or her better understand the disease, treatment options and side effects.

LLS offers free materials and services designed to simplify this search for information and support. Navigate the Resources for Patients and Caregivers tab at the top of this website for disease information, support and education resources, or contact an LLS Information Specialist.
Never hesitate to contact me directly if you have questions about any of these services or need help getting access to them.  
_______________________________________________________________________________

Seetha Modi is the Patient Access Manager of the North Texas Chapter of The Leukemia & Lymphoma Society and author of this monthly blog series.  She has an Masters in Public Health and has experience working with varied aspects of the healthcare industry, including hospitals, the CDC and other health-related nonprofit organizations.

Contact Seetha:
(972) 996-5905

Tuesday, October 25, 2016

Patient Education: Living with Chronic Myeloid Leukemia


Blood Cancer Awareness Month wrapped up and the impact of LLS remains strong in the world of acute leukemias.  I am excited to share some of the latest research that shows promise for patients with Acute Myeloid Leukemia (AML).

LLS was a funder of Dr. David Sykes (Massachusetts General Hospital and the Harvard Stem Cell Institute), lead author of a study that found a common point in the genetic pathway that leads to AML, which could point to a treatment target that could benefit AML patients with various genetic abnormalities.  In the study, they found that targeting this point with an enzyme inhibitor (DHODH inhibitor) allowed them to identify how to set the treatment dosage in mice to limit side effects of chemotherapy while enhancing length of remission.  This is great news for the potential of this type of targeted treatment for AML and other cancers.


There will be a CML webinar on November 2nd for patients and caregivers. These types of programs are funded by the support of LLS fundraisers. Register here.


Many patients with chronic myeloid leukemia (CML) receive a blood test called a PCR test (which stands for Polymerase Chain Reaction) multiple times per year. You may also hear this test referred to as a BCR-ABLPCR test. This test can find a very small number of CML cells in your blood. The results help doctors decide if the CML is under control.

Even with insurance, this test may show up on your bills. LLS can help pay these costs. We can provide help with up to $1,000 of your BCR-ABL PCR test costs during your enrollment period. Individuals with or without insurance can apply. No dollar amount is too small, so please call or apply today.

To be eligible for the program, you must:
• Have a chronic myeloid leukemia (CML) diagnosis
• Be a United States (US) citizen or permanent resident of the US or Puerto Rico
• Meet the household income requirements. Click here to see if you are eligible.
• Apply by Phone: (877) 614-9242
• Apply Online: Click here (You will need to register before submitting an application.)
If you have questions or are unsure whether you have CML or receive this test:
• Call (800) 955-4572, email or live chat

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Seetha Modi is the Patient Access Manager of the North Texas Chapter of The Leukemia & Lymphoma Society and author of this monthly blog series.  She has an Masters in Public Health and has experience working with varied aspects of the healthcare industry, including hospitals, the CDC and other health-related nonprofit organizations.

Contact Seetha:
Seetha.Modi@lls.org
(972) 996-5905

Friday, October 7, 2016

NTX Blood Cancer Conference: We Want to Know What You Think!



As September Blood Cancer Awareness Month comes to a close, we think back to two of the North Texas Chapter's largest patient-focused events: the 11th Annual North Texas Blood Cancer Conference and the Inaugural North Texas Cancer Expo.

If you attended either event, we want to know what you thought!  

Below are the links to three different 10-question surveys.
Please select the survey that applies to you.

I attended the NTX Blood Cancer Conference - General Session
 CLICK HERE
I attended the NTX Blood Cancer Conference - Health Care Professional CLICK HERE
I attended the NTX Cancer Expo  CLICK HERE

Your participation in filling out this survey will help us continue to make this event one that helps patients, survivors, caregivers and healthcare professionals better equipped to handle a cancer diagnosis.

Thank you for your continued support.

Monday, September 19, 2016

Travel Assistance Program: Re-Opening Today!



The Leukemia & Lymphoma Society's  (LLS) Susan Lang Pay-it-Forward Patient Travel Assistance program will reopen on Monday, September 19, 2016 at 12PM EST. 

LLS recently received funding specifically for pediatric patients defined as “children and adolescents 19 years of age or below at the time of application”.  The pediatric fund is limited and is expected to fill quickly.  Once these allotments are filled, patients may apply to the general fund for assistance.  

Qualifying patients can only receive travel assistance once per fiscal year.

Available Funding
General Fund – provides assistance for patients with all blood cancers
Pediatric Fund (limited) –provides assistance for children and adolescents (19 years of age or below at time of application) with all blood cancers.

Patient Eligibility
Patient eligibility criteria for travel assistance:

·         Applicants (patients) must be US citizens or permanent residents which is verified by applicant’s physical address; and
·         Applicants must have a confirmed diagnosis of blood cancer; and
·         Applicants may be insured or uninsured; and
·         Applicants must meet financial eligibility criteria defined as an annual income at or below 500% of the Federal Poverty Level (FPL)  

A one-time grant of $500 is available for qualified patients per year:

·         Awards are limited to one per patient, per year; and
·         Awards are based upon a first-come first-serve basis; and
·         The program will be offered for as long as funding is available; and
·         Award is distributed via the Susan Lang Pay-it-Forward patient travel assistance credit card


Approved Travel Expenses: ground transportation, tolls, gas, parking, car rental, air transportation, lodging, and ambulance services.

Expenses NOT Covered: food, drinks and alcoholic beverages, tobacco products, automotive parts/supplies and repair, auto dealers, travel agencies, baggage fees, and international travel.

How to Apply

Patients can apply via the online portal at www.lls.org/travel or by calling ourtoll free number: 844-565-2269.