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Showing posts with label Freebie Friday. Show all posts
Showing posts with label Freebie Friday. Show all posts

Friday, November 22, 2013

Freebie Friday: Save the Date!



Ivie & Associates, the 2014 Presenting Sponsors of the Big D Climb, is getting a jump on its fundraising for The Leukemia & Lymphoma Society (LLS).   The annual Rock For The Climb benefit concert is the company's largest single push in its team fundraising effort.  

The Big D Climb has become part of the Ivie & Associates culture.  Each year more than 100 Ivie employees, their families and friends fundraise and participate in the 52 flight stairclimb together.  Join them in 2014 as they march to the top of Fountain Place on Saturday, January 25, 2014.  

Register today at www.bigdclimb.org




Friday, November 8, 2013

Freebie Friday: Celebrating Male Survivors

November has come to represent more than Thanksgiving and the kick-off of the Christmas season in the United States.  For many, November has transformed into Movember - a month about raising awareness of men's health issues.  Here at The Leukemia & Lymphoma Society (LLS) we are taking this month as an opportunity to celebrate male blood cancer survivors.

CELEBRATING SURVIVORS


Today Zach Rigby is a senior at the University of Texas, the Vice President of the Silver Spurs (a student organization dedicated to the care of Bevo), and most importantly, a survivor.  Zach was diagnosed with adult Hodgkin's lymphoma on his 16th birthday.  After a difficult treatment plan, he was declared to be in remission and has been living an active, healthy lifestyle ever since.

Zach's father, Steve Rigby, is currently the chairman of the North Texas Board of Trustees.  Recently the Rigby family hosted Bevo at a fundraiser before the University of Texas vs. New Mexico State game and raised $7,500 at the event for pediatric blood cancer research.

We are thrilled to count Zach among the thousands of blood cancer survivors in North Texas.

Friday, July 26, 2013

Freebie Friday: Meet Melissa Garner


My name is Melissa Garner, and I am the Patient Advocate Manager with The Leukemia & Lymphoma Society (LLS).

A grant from Baylor University Medical Center funds my unique position.  I work with patients and families, providing them with information about LLS and patient services, in addition to providing education and support groups.  I am on-site at Baylor to assist with any issues a blood cancer patient, or family member, may have.
What amazes me the most about this job, and what I feel is the most rewarding aspect of it, is being able to listen to people’s stories.  I am always amazed at the strength, resilience, faith, and hope that I see each week. 
While confronting what is often the scariest event in their lives (a blood cancer diagnosis usually followed by chemotherapy and a stem cell transplant), people more often than not show just how strong they truly are.
Of course, this doesn’t mean there isn’t a great deal of pain and vulnerability that goes along with it.  It just means that people find a place within themselves to connect to faith and hope too.
This is also very true for the caregivers as well.  Just today I talked to a caregiver who said, “My husband (the patient) has always been the strong one, not me.  I never was, until now. “
She is balancing a home life, young children, and being there for her husband at the hospital.  She has been here with him since April, and this is his second go at a stem cell transplant.  She shared with me how scared she felt, but at the same time, she knew she was surrounded by a strong faith and a support system of friends.  All of this gave her strength.
I get the honor and privilege of listening to people share stories like this all the time.  I feel their stories are such gifts to anyone who hears them.  I am better for hearing them. 
I also really want people to know that we at LLS are there for them throughout their blood cancer journey.  I typically will end my visit with them saying something like this:
"Please know that LLS is in your corner and that we are here for you.   Even if it’s a year from now or sometime down the road, please know that you can always call me and we will be there for you.  Even if it’s something we can’t answer for you directly, please know we will help you find out who you can talk to.  Just know we are here for you." 
When I say this, I see their faces brighten and a real sense of relief comes over them.  I am proud to be affiliated with LLS Patient Services because being there is so important to our patients and families.

Friday, July 19, 2013

Freebie Friday: New Ideas in Blood Cancer Research


The Leukemia & Lymphoma Society (LLS) has recently developed a new grant concept to facilitate innovations in research and science. "The New Idea Award" grant concept funds untested treatment paradigms that are safer, more effective and substantically different from current therapies. Because these types of treatment are less likely to be funded by the traditional grants administered by the National Cancer Institute, the New Idea Award grant is crucial to ensuring the delivery of novel treatments and ultimately cures for more patients with blood cancers.

Applicants interested in the New Idea Award submit their innovative idea or approach as well as a method for testing it within the one-year grant period. Grants will be awarded up to $100,000 for the first year, after which applicants will be evaluated on the extent to which their innovative concept was substantiated based on initial testing. LLS plans to fund up to eight awards this first year and hopes that each new idea will help with the clinical advancement of cancer treatments.

A volunteer panel of researchers who are leaders in blood cancer treatment and research, chaired by Armand Keating, MD, Director of the Division of Hematology at the Institute of Biomaterials and Biomedical Engineering at the University of Toronto, will peer-review all grant applications. Panelists initially screened more than 100 applications and selected three dozen for review. After closely evaluating all applications, the panel will present their final recommendations in June for grants that will begin in October.

We look forward to releasing the names and projects of the winners of The New Grant Award later this year.

Friday, July 12, 2013

Freebie Friday: Meet Sharis Hauder


I come from a long line of educators and have my Elementary Education Certification. I always planned on being a teacher until I developed a passion for the law while in college. I went to law school and practiced for 14 years but always had it in the back of my mind to get into the education field at some point in my life.  I now have that opportunity as a Manager for the School and Youth Program for the North Texas Chapter of The Leukemia & Lymphoma Society (LLS).  While I’m not in the classroom on a daily basis, I’m glad I have found an opportunity to work with schools and interact with students while also helping to find a cure for blood cancers. 

I don’t have a personal connection to a blood cancers but I have seen how blood cancer research has benefitted patients with other types of cancer. My brother has been battling thyroid cancer for seven years so my work with LLS has found a new purpose. Knowing the funds our students raise may one day benefit my brother has renewed my dedication to our mission.

My role within the School and Youth Program has given me the chance to develop relationships with educators that I truly cherish. Educating students about blood cancers and the importance of serving our communities is the most rewarding part of my job.

We had a wonderful year last year and we could not have accomplished so much without the help and dedication of our school coordinators. To our coordinators out there, thank you so much for all your work and I hope we have the opportunity to work together in the coming year.  If you don’t already participate, please consider registering for our Pennies for Patients or Pasta for Pennies Programs this upcoming school year. The program is easy to administer, can be run at any time during the school year and teaches students about the value of giving back to your community.

There are a number of new elements to our program this year.  We are introducing new materials for high school students this year and offering new opportunities for schools to accept online donations. More details about the program and the chance to register can be found at
www.schoolandyouth.org/ntx. Be sure to like us on Facebook so you can keep up to date on all our activities.  https://www.facebook.com/NtxSchoolAndYouth

Friday, June 21, 2013

Freebie Friday: Meet Margo Gary


This is me at around mile 12 at Nike Women’s Half Marathon in San Francisco in 2011 – my very first Team In Training (TNT) event.  I look so happy because it is downhill and I’m closing in on the finish. Little did I know this was just the beginning!
Did I find Team In Training or did it find me? Good question! I actually believe TNT found me. I had heard of TNT and even received the flyers but I never felt the need to check it out until March 2011. When one came in the mail I actually looked at it and Nike San Francisco was one of the events. My mom was from San Francisco and had recently passed away from non-Hodgkin’s lymphoma. In fact her ashes were put in the Bay in December 2010. I didn’t need to be hit with a ton of bricks to know I had to do this in memory of her.
That first season with TNT literally changed my life. I met the most wonderful people, heard the most inspiring stories from and about our Honored Heroes, learned about research funded by LLS, and found out about treatment and drugs that would not be available without the dollars TNT raised. All of the helplessness and anger I had felt during my mother’s illness could be channeled into a positive activity. I signed up for a second season and a third season and am now registered for the upcoming BOA Chicago Marathon.

Not only do I actively support Team In Training as a participant but I work in the Fort Worth office as a Team In Training Campaign Specialist.

Join me this Winter Season by joining the TEAM!  We are headed to some exciting races in memorable locations.

El Tour de Tucson Cycle Century Ride - November 23, 2013
Metro PCS Dallas Half and Full Marathon - December 8, 2013
Walt Disney World Marathon Weekend - January 9-12, 2014
Rock 'n' Roll New Orleans - February 2, 2014

Sign up today and find out how Team In Training will change your life too!
https://www.teamintraining.org/ntx/firsttimehere/signup.
     

 

Friday, April 12, 2013

Freebie Friday: Meet Mark Lenz, Board of Trustees Member


Mark Lenz, center, shakes hands with old friends at the
2011 Links Fore Leukemia Golf Tournament.

My introduction to The Leukemia & Lymphoma Society came rather abruptly in 1995 when a friend and former colleague of mine was diagnosed with leukemia.  Up until then, I did not personally know anybody that had been diagnosed with cancer, much less a cancer of the blood.  Jim Willis and I worked together at Arthur Anderson for several years before his diagnosis. 

During that fight against leukemia, Jim met Bob Barker, another leukemia patient at UT Southwestern and avid golfer.  Together, they decided to combine their love of golf with the personal battles they were both waging to beat leukemia.  The first Links Fore Leukemia Golf Tournament was held in the Spring of 1997 and all of the proceeds benefited The Leukemia & Lymphoma Society (LLS) and its mission to find a cure for blood cancers.  The tournament was made up of a small group of dedicated people who stood behind Jim and Bob and their fight to beat leukemia.  Sadly, shortly after the first event Jim lost his battle, leaving behind his wife and two young children.  Bob, along with Jim’s family and friends, used his passing as motivation to grow the tournament and continue to give money to LLS in Jim’s honor.   What had started as a golf tournament took on a much deeper purpose for all of the golfers involved.

I played in and fundraised for the golf tournament in Jim’s honor the first couple of years but it was not enough.  I wanted to do more.  It was then that I decided to join the Links Fore Leukemia Golf tournament committee and work with a team of people to plan and execute the tournament.  We worked relentlessly to recruit new sponsors, attract golfers and make it one of Dallas/Fort Worth’s most exclusive golf tournaments.  Every person who has ever served on the Links Fore Leukemia Golf Tournament committee or supported our event is proud of the tournament, what it represents and the impact it is having on the cutting-edge research LLS is funding. 

Not long after I got involved with the Links Fore Leukemia Golf Tournament’s committee, I took the next step and joined the Board of Trustees for the North Texas Chapter of The Leukemia & Lymphoma Society.  This is a role I have served in for the last several years. 

I am proud to say that Jim’s tournament co-founder, Bob Barker, survived his battle with leukemia and remains very involved with the Links Fore Leukemia Golf Tournament.  He is instrumental in recruiting sponsors and players and carrying on the true mission of the event.  Bob still suffers from a number of serious side effects following his bone marrow transplant many years ago but that has not dampened his spirit and determination to find a cure for blood cancers.   He will at the 2013 Links Fore Leukemia Golf Tournament on Monday, May 6th.  I have never seen anyone work harder for the cause and not feel sorry for the hand he has been dealt. 

Recently, I have been able to put one of my other passions to work for LLS.  I took up photography several years ago and enjoy the challenge of making images tell a story.  LLS events in North Texas provide me an opportunity to capture many different stories; whether it’s  a recovering patient, a long term survivor, a family honoring the memory of a lost loved one.   I have taken photos at the Big D Climb, the Leukemia Cup Regatta, the Lonestar Blood Cancer Conference and at the Light the Night walks in Fort Worth and Dallas.  I hope that some of the images will tell a story that will inspire others to participate in LLS events.

The main reason I continue to work with the Board of Trustees and on the Links Fore Leukemia Golf Tournament is to help raise funds and awareness so that those survivors like Bob can have a better chance at a normal life and that more blood cancer patients can join Bob as a survivor.

Registration for the 2013 Links Fore Leukemia Golf Tournament Presented by Safety-Kleen is now open.  Click here to register and learn more about the tournament on Monday, May 6th.  Golfers will tee off on both the Old American and The Tribute Golf Courses in this scramble tournament.  Reserve your spot today! 

Friday, April 5, 2013

Freebie Friday: Teaching During Treatment

Sarah Tran is currently training for the Mayor's Marathon in Anchorage, Alaska with Team In Training.

Sarah Tran thought she had a cold.

“It made sense,” Tran, a SMU associate law professor, said. “Many other faculty members were sick with colds at the time.”

However, on October 13, 2012, after a week of having no voice while trying to teach property law to 80 first-year law students, Tran decided to go to the doctor. And that’s when she found out her acute myeloid leukemia, which had been in remission for four and a half years, had come back.

She immediately checked into the hospital for 28 days to receive treatment.

“My first thought was, ‘What am I going to do about my class?’” Tran said. “I didn’t want to just hand the reins over to someone else.”

Tran realized how difficult the law school can be for first-year students, and she said she was afraid that by letting another professor take over her class, she’d be doing them a disservice.

“Law school is very stressful. When you step into a first-year class, you can smell the stress,” Tran said. “And then to have the students go through half the semester and get a new professor, that would be a jolt.”
So she came up with a plan. From 1 to 2:30 p.m. on Wednesdays and Fridays, Tran shut the door of her hospital room at Baylor Medical Center in Dallas and opened her laptop. Back at SMU, the students used the 10- by 8-foot projector screen in the room to connect with Tran over Skype.

“I must have looked humongous,” Tran said. “I can only imagine that my nose must have been the size of a garbage can.”

But despite what she might have looked like, she was able to teach, call on students, and manage a classroom like normal. Well, almost.

“Skype definitely didn’t work perfectly,” Tran said. “There were computer glitches.”

The students, including first-year Vanessa Murra-Kapon, recognized the kinks in the system.
“We couldn’t hear her at the beginning,” Vanessa said. “After the first couple of classes, though, it got better.”

Sometimes the call would drop, or the connection would lag for a bit. Tran also had difficulties presenting PowerPoint slides since the projector screen was being used to broadcast her face and voice.

Tran also realized there were certain things that she couldn’t do without being physically present.
“When you’re actually in the classroom, you can walk around,” Tran said. “You can look people in the eye.”

However, she did have a bit of help along the way. Two of Tran's former students, Rachel Quisenberry and James Arnott, helped work Skype in the lecture room and collected attendance sheets. She describes them both as “superstars.”

During the Skype sessions, Tran was always straight to business.
“She would spend maybe a minute telling us about how she was doing,” Murra-Kapon said. “But after that, it was just property law.”

The exception was promoting health causes. Tran let her class know that bone marrow and blood donors were saving her life. By the end of the year, several students from her class had donated blood.

“It meant a lot to me,” Tran said. “They were all-around amazing students.”

One day during her hospital stay, the students all coordinated to wear orange, the color of leukemia awareness. On another day, Murra-Kapon had the entire class sign a 4-foot-tall card and hand delivered it to the hospital.

“Her determination, her courage, her professionalism taught us so much throughout the semester,” Vanessa said, “It was the least we could do.”

Some classes were easier for Tran than others. One Wednesday morning, she woke up with a fever of 105.2 degrees. She knew that other co-workers canceled classes when they were ill, but she decided to give it a go.

“I knew it would start out rough,” Tran said, “But teaching makes me feel better.”
And, strangely enough, it did. By the time her class had ended, the fever had subsided, and it never came back.

On November 10, 28 days or 10 class periods after she entered the hospital, Tran was released. On November 13, Property Law I filed into their classroom, expecting once again to be taught via Skype. But they got something else instead.
“When she walked into the room, everyone was confused,” Murra-Kapon said.

Tran says that she saw a look of shock in many of the students’ faces. As soon as they realized what was going on, the whole class clapped for her.

“We thought she was so brave coming back to class,” Murra-Kapon said.

But after the applause subsided, it was back to federal regulations and case studies. “Strictly business,” Tran said.

The rest of the semester finished out relatively calmly for the professor and her class.

Tran asked that if students were sick, they stay home, as her weakened immune system would be especially susceptible to all diseases.

But amazingly, throughout the entire Fall 2012 semester, Tran didn’t miss teaching a single class.
“She had the right to take medical leave,” Murra-Kapon said. “She could have done it without any problem and no one would have thought any less of her. But she didn’t, and I admire her so much for that.”

This semester, Tran is taking a research leave to work on her papers, but next year, she feels confident about coming back to teach.

“I feel like I’m in great shape,” Tran said. “I’ve started running again and playing volleyball. It’s odd, but I feel totally normal."

Read the original story by Bubble Life here.