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Showing posts with label acute lymphoblastic leukemia. Show all posts
Showing posts with label acute lymphoblastic leukemia. Show all posts

Wednesday, August 16, 2017

Dallas Light The Night Honored Hero: Brennen Lyons

The Light The Night Walk (LTN) to benefit The Leukemia & Lymphoma Society (LLS) celebrates participants in all stages of a cancer battle - patients, survivors, caregivers, friends and family.  Each year the LTN team selects a couple honored heroes for each walk site to serve as inspiration.



Brennen Lyons is one of the 2017 honored heroes for the Dallas Walk.  As you read his story, told by his mother, you will see why he was chosen for this honor.  He is such a strong little boy.

Brennen was diagnosed with Acute Lymphoblastic Leukemia at the age of 2.

His mother tells his story in her own words.

"Just the word “Leukemia” was scary to me at the time.  I had no idea everything that went along with it and the journey we were about to be on as a family.  I guess the story really starts the first week of June.  I had to be admitted to the hospital to be monitored for a week before I could deliver Brennen’s little sister, Brooklyn.  It was the first time I had been away from Brennen overnight.  He started to be extremely cranky, not eating well and waking up at night.  We contributed it all to the fact he was away from his mommy for the first time.  I finally delivered my baby girl on June 11, 2010.  That day, my parents brought Brennen up to the hospital to see me and his new sister.  I immediately asked them if they thought his face looked puffy.  Everyone told me he looked fine and nothing was wrong.  However, when we got home, the crying, not eating well, etc. continued.  I called his pediatrician and got a same day appointment.  Verdict- ear infection.  Ok, no big deal.  He had several before this one.  But two days later and he was not improving and now his little lymph nodes were swollen.  Took him back to pediatrician and they explained the infection was just really bad and gave a stronger antibiotic.  Next morning, his little neck looked like he swallowed a golf ball.  Once again, back to the pediatrician.  This time, they decided to run labs.  Nurse came back in the room and explained the sample didn’t work and they needed to get another sample.  I didn’t think much of it.  About 10 minutes later, the pediatrician came in and started crying.  Instinctively, I started crying and I didn’t even know anything yet!  The fact the doctor was crying was a very bad sign!  She explained to me that her machine wouldn’t even read Brennen’s white blood count due to it being high and that she was certain he has either Lymphoma or Leukemia.  My heart sunk but a part of me thought she could be wrong.   She called Texas Children’s Hospital and told them we were on our way.

When we arrived, they were indeed waiting for us.  They instantly took us back to a room, ran labs, did an echocardiogram, x-rays- you name it.  Within a few hours, they confirmed he had Acute Lymphoblastic Leukemia.  His WBC was so high they were afraid his little organs were going to shut down and he had a large mass around his heart and trachea.  He would have literally suffocated if I had not taken him in when I did and the mass continued to grow.  Due to his high counts, he was admitted to the ICU.  That day and the days to follow for the next 3 ½ years have left memories a mother should never have.  Watching what he had to go through was heartbreaking.

Brennen is truly my hero.  He would wear a smile even when in pain.  He endured 26 Lumbar punctures, 10 days of radiation, 6 cancer center hospital stays, 1 ICU stay, 7 blood transfusions, 2 bone marrow aspirations and 3 years, 3 months and 27 days of chemotherapy!!

I thank God every day for Brennen’s strength and courage to get through.  I am so grateful!  I pray for a cure so others do not have to go through this."


Inspired by Brennen? Consider walking alongside him on Saturday, November 11th at Trinity Groves in Dallas. Registration is now open

Wednesday, April 13, 2016

Dallas Light The Night Honored Hero: Bennett Towbin

Bennett posing with Dallas Stars Center
Vern Fiddler before a game
The Light The Night Walk (LTN) to benefit The Leukemia & Lymphoma Society (LLS) celebrates participants in all stages of a cancer battle - patients, survivors, caregivers, friends and family.  Each year the LTN team selects a couple honored heroes for each walk site to serve as inspiration.

Bennett Towbin is the embodiment of the expression - "don't underestimate the little things."  The North Texas Chapter first met Bennett and his family at the 2015 Dallas Light The Night when they walked under the team name "Don't Mess With Towbin."  The name couldn't be more fitting for this little guy.


In March 2014 he was diagnosed with acute lymphoblastic leukemia (ALL) at two-and-a-half years old.  Doctors went after this diagnosis with an aggressive treatment plan that put him into remission within the first month.  Now he is a year into the maintenance phase of his treatment regimen and will continue it through Summer 2017.  


Life is slowly returning back to normal for Bennett, despite the fact that he will be closely monitored by doctors for the next several years.  His family marvels at the strength and maturity Bennett showed during the initial phase of his treatment and knows he will finish out his maintenance phase with the same courage and determination.  


The North Texas Chapter is thrilled that "Don't Mess With Towbin" will be back at the 2016 Dallas Light The Night Walk at Trinity Groves.  Walk along side Bennett and other blood cancer survivors on Sunday, November 6th by registering today at www.lightthenight.org/ntx

Friday, April 8, 2016

MWOY Boy of the Year: Brian Shaw


The 2016 North Texas Man & Woman of the Year (MWOY) campaign will kickoff in 4 days.  As the candidates gear up for the ten-week fundraising competition, the focus turns to the North Texas Boy of the Year.  Brian Shaw will serve as inspiration for the nine candidates raising money for The Leukemia & Lymphoma Society (LLS) during the campaign.

Brian's parents suspected something with wrong with their energetic, happy, intelligent and compassionate four-year-old when he started acting differently.  Their doctor determined he had acute lymphoblastic leukemia (ALL), the most common type of cancer in children under 18, and started his grueling treatment immediately.  Now three and a half years later, Brian is in the final six months of his treatment regimen and the treatment's side effects are starting to wane so he can get back to doing what he enjoys most - going to school, painting and participating in anything competitive.  

One mantra has guided Brian and his family during the whole treatment process: turn bad luck into something good.  The Shaws have used this saying as a rallying cry and have been very involved in sharing Brian's story, fundraising for LLS through various campaigns and advocating for the advancement of better research.  They know that although Brian responded well to treatment, there is still much work to be done.

The North Texas Chapter is honored to have Brian serve as the Boy of the Year and know that he will inspire the 2016 MWOY candidates to do great things. 

The MWOY kickoff is scheduled for Thursday, April 12th at Sambuca in Uptown Dallas.  Visit mwoy.org/ntx to learn more about the campaign and its candidates.

Tuesday, April 5, 2016

MWOY Girl of the Year: Sadie Keller


The 2016 North Texas Man & Woman of the Year (MWOY) campaign will kickoff in 7 days.  As the candidates gear up for the ten-week fundraising competition, the focus turns to the North Texas Girl of the Year.  Sadie Keller will serve as inspiration for the nine candidates raising money for The Leukemia & Lymphoma Society (LLS) during the campaign.

Being an inspiration for others is not new to 8-year-old Sadie.  She is currently in treatment for acute lymphoblastic leukemia (ALL) and is using her cancer experience to help other children undergoing a similar treatment regimen.  It started when she took an iPad into a closet at home and started recording herself giving advice to other children going through treatment.  Hair loss, coping with chemotherapy, ports, understanding the next steps, what it is like to have cancer as a kid - she covers it all from her perspective and posts them on YouTube.  Sadie's family didn't realize what she was doing until she asked for help posting them online.  Her videos have hit a chord with viewers, many have been watched several thousand times.

While Sadie is in the maintenance phase of her treatment and out of the hospital, she hasn't lost track of what it felt like to be stuck inside and away from friends and family.  Last December she put together "Sadie's Sleigh" and collected more than 1,300 toys to donate to children who spent the holidays in the hospital.  Her success caught the attention of the Today Show as they chronicled the successes of this young North Texas girl with a heart of gold.

The North Texas Chapter is honored to have Sadie serve as the Girl of the Year and know that she will inspire the 2016 MWOY candidates to do great things.

The MWOY kickoff is scheduled for Thursday, April 12th at Sambuca in Uptown Dallas.  Visit mwoy.org/ntx to learn more about the campaign and its candidates.