Friday, August 29, 2014

Did You Know: Information Resource Center

North Texas Deputy Executive Director
Stacey Russell (left) with Executive Director
Patricia Thomson (right).
The Leukemia & Lymphoma Society (LLS) offers a number of support services for blood cancer patients and their families, one of which is the Information Resource Center.  Stacey Russell, the North Texas Deputy Executive Director, recently took advantage of the system and sent the following email out to the North Texas Staff.

"Hi everyone,

If you did not know or have not utilized the Information Resource Center (IRC) yourself, you should!  I called today to ask for assistance in finding out about a new clinical trial option for one of our long time supporters whose husband is battling myeloma.  I started with the IRC because they have an amazing clinical trial search right there online.  I tried navigating the website myself, however, it asks for personal information about the patient for eligibility and I did not have that information.  So I picked up the phone and called the IRC.  I have worked at LLS for 13 years and this is the first time I have ever called this line and I don't know why I waited - it was incredible!  

I spoke with Beatrice at the IRC about a couple clinical trial options.  She didn't have the exact information I needed (start date, application process, etc.) but said she would find out and get back to me.  She did and sent me two emails with two different clinical trial options and an article about more information on immunotherapy for myeloma.  Absolutely amazing!  Part of what we do everyday makes the IRC possible and what if, just what if, it works for them!  Miracles in the making, at least let’s hope!  

Thank you all!


We encourage you to reach out to the IRC if you have questions about any of the following:
- Clinical Trials
- Updated disease information
- Financial matters
- Education materials
- Patient education programs
- LLS discussion boards
- Help communicating with a member of your healthcare team

The IRC is open from 9:00 am - 9:00 pm EST for calls at (800) 955-4572.  If you don't feel like talking on the phone, you can chat online or send an email.  Interpreters are available in 170 different languages.

We encourage you to take advantage of this resource.

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