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Tuesday, October 25, 2016

Patient Education: Living with Chronic Myeloid Leukemia


Blood Cancer Awareness Month wrapped up and the impact of LLS remains strong in the world of acute leukemias.  I am excited to share some of the latest research that shows promise for patients with Acute Myeloid Leukemia (AML).

LLS was a funder of Dr. David Sykes (Massachusetts General Hospital and the Harvard Stem Cell Institute), lead author of a study that found a common point in the genetic pathway that leads to AML, which could point to a treatment target that could benefit AML patients with various genetic abnormalities.  In the study, they found that targeting this point with an enzyme inhibitor (DHODH inhibitor) allowed them to identify how to set the treatment dosage in mice to limit side effects of chemotherapy while enhancing length of remission.  This is great news for the potential of this type of targeted treatment for AML and other cancers.


There will be a CML webinar on November 2nd for patients and caregivers. These types of programs are funded by the support of LLS fundraisers. Register here.


Many patients with chronic myeloid leukemia (CML) receive a blood test called a PCR test (which stands for Polymerase Chain Reaction) multiple times per year. You may also hear this test referred to as a BCR-ABLPCR test. This test can find a very small number of CML cells in your blood. The results help doctors decide if the CML is under control.

Even with insurance, this test may show up on your bills. LLS can help pay these costs. We can provide help with up to $1,000 of your BCR-ABL PCR test costs during your enrollment period. Individuals with or without insurance can apply. No dollar amount is too small, so please call or apply today.

To be eligible for the program, you must:
• Have a chronic myeloid leukemia (CML) diagnosis
• Be a United States (US) citizen or permanent resident of the US or Puerto Rico
• Meet the household income requirements. Click here to see if you are eligible.
• Apply by Phone: (877) 614-9242
• Apply Online: Click here (You will need to register before submitting an application.)
If you have questions or are unsure whether you have CML or receive this test:
• Call (800) 955-4572, email or live chat

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Seetha Modi is the Patient Access Manager of the North Texas Chapter of The Leukemia & Lymphoma Society and author of this monthly blog series.  She has an Masters in Public Health and has experience working with varied aspects of the healthcare industry, including hospitals, the CDC and other health-related nonprofit organizations.

Contact Seetha:
Seetha.Modi@lls.org
(972) 996-5905

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